Wednesday, April 28, 2010

I Am So Grateful

Hello Everyone! So i have beenthinking about how much i have been complaining on this thing about Kylah's issues. I apologize, that is definately not what i meant to do. On the contrary, i don't feel sorry for us, or hate having to go through all this stuff. These problems have been such a blessing in our lives, and more than that Kylah (and Maddox and Beckam) have been such a blessing to our lives. I am so grateful that she is mine. I am so grateful that she get the medical attention she needs. I am so grateful for all the wonderful programs out there to help her be the best she can be. I am so grateful Heavenly Father gave her to a loving supportive family- us! It all gets stressful and is emotionally hard at times but I am so grateful to have these experiences. We actuall just got back from the Endocrinologist and they think she might have Diaetes Insipidus and also that she might not be producing enough growth hormone. DI is different than the Diabetes that deal with sugar, etc. (my bro has had that kind for 30 years). We hae to do a 24 hour test at home then depending on that she will have to be hospitalized and have testing done there, this is a rare disease. Sad my girl has to go through this stuff but so grateful i can be going through it with her!!!!!!!!


  1. We were lucky so far with Skyler not having DI. But we're pretty sure he will need growth hormone. Which they tell me is about $30,000 a year here in Canada. I'm not sure if you have anything like pharmacare that we have up here where the gov't will pay for a portion of the cost of meds you can't afford, but I hope so. Does Kylah have any other endocrine issues?
    Skyler doesn't produce any testosterone or hydrocortisol either.

    And while our children may be the most wonderful important amazing precious people/blessings in our lives, we are entitled to complain a little here and there. It doesn't make you a bad parent. Sometimes it is a lot of stress, and it's okay to acknowledge that. Just my opinion though.

  2. it's not complaining telling people what you are going through. if i was there i'd smack your shoulder and say "stop feeling guilty". we love kylah and i really like the updates. also thanks for posting new pictures!! i didn't recognize your children they have grown so much.

  3. Hey, can't wait to hear more about you guys, I hope you are well!

  4. i realize this was ages ago Ashley...but i only just started being able to have the time to read others blogs. I hope that everything is better and that she doesn't have the issue. Call me sometime...are you going to Monika's Craft Party? 2819749019 my number